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翻訳と辞書　辞書検索 [ 開発暫定版 ] スポンサード リンク European Huntington's Disease Network ： ウィキペディア英語版 European Huntington's Disease Network The European Huntington's Disease Network (Euro-HD or EHDN) is a Europe-wide network of professionals and people affected by Huntington's disease, who collaborate to organise and perform research into the condition, and improve the care of HD-affected individuals.〔(【引用サイトリンク】url=http://www.euro-hd.net/html/network/project )〕 Huntington's disease (HD) is an incurable, genetically inherited degenerative brain condition that causes progressive impairment of motor function and cognitive decline and psychiatric symptoms. EHDN was founded in 2003 and is financially supported by the CHDI Foundation.〔 EHDN provides an infrastructure for multi-national observational studies and interventional clinical trials in HD; organises biannual plenary meetings attended by professionals and HD family members; supports a range of working groups focusing on aspects of the disease; and provides endorsement and seed funding for individual research projects.〔 At December 2011, EHDN had over 1000 regular members in 26 countries.〔(【引用サイトリンク】url=http://www.euro-hd.net/html/network/project/membership )〕 EHDN's activities are governed by an elected Scientific and Bioethics Advisory Committee and an Executive Committee.〔 The core project of EHDN is the REGISTRY study, a multi-national observational project that aims to study the natural history of HD and expedite recruitment of suitable volunteers into clinical trials.〔(【引用サイトリンク】url=http://www.euro-hd.net/html/registry/about/description )〕 At December 2011, REGISTRY had enrolled over 7700 subjects in 145 sites,〔(【引用サイトリンク】url=http://www.euro-hd.net/html/registry/about/enrolment )〕 and generated nine peer-reviewed publications.〔 〕〔 〕〔 〕 The ''MermaiHD'' study of pridopidine and ''HORIZON'' study of latrepirdine in Huntington's disease were coordinated in Europe by EHDN.〔(【引用サイトリンク】url=http://www.euro-hd.net/html/projects/horizon )〕 ==References== 抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』 ■ウィキペディアで「European Huntington's Disease Network」の詳細全文を読む スポンサード リンク 翻訳と辞書 : 翻訳のためのインターネットリソース Copyright(C) kotoba.ne.jp 1997-2016. All Rights Reserved.